More data are being generated now than ever before—and this holds the potential to transform the way we deliver care throughout the entire Canadian health system, including cancer care.
Together with the Canadian Cancer Society (CCS) we worked with partners throughout the Canadian health and data systems to create the cancer data strategy that will guide efforts to enhance the collection, integration, and use of cancer data.
Why is a cancer data strategy important?
Canada needs a focused plan to ensure we have high-quality cancer data to support better cancer care decisions. With the goal of improving cancer prevention, access to care and outcomes and making cancer care in Canada better and more equitable, the cancer data strategy outlines a framework to guide efforts to enhance the collection, integration and use of cancer data.
Data provides critical information that helps focus cancer research, shape the delivery of cancer prevention, screening, diagnosis, treatment and services, and inform policies that affect the health of people in Canada. Given the tremendous impact data has on cancer care experiences and outcomes for people facing the disease, we embedded patient and caregiver perspectives throughout the strategy.
– Dr. Stuart Edmonds, Executive Vice President of Mission, Research and Advocacy at CCS
What does the cancer data strategy include?
Building on the strong foundations laid by the Pan-Canadian Health Data Strategy (pCHDS), the Partnership and CCS worked with various partners, including provincial and territorial cancer agencies and programs, healthcare organizations, First Nations, Inuit and Métis partners, researchers, policymakers and people with lived cancer experience to create a cancer-specific data strategy that includes:
- a framework to guide the mission, vision, values and success factors for improvements in cancer data
- three priorities for action and investment including:
- improving the efficiency, timeliness and quality of data capture and access
- enhancing linkages to current data
- filling gaps in current data collection and availability
- a section on the importance of First Nations, Inuit and Métis data sovereignty, with examples of First Nations, Inuit and Métis-led efforts to improve data and data governance
Support First Nations, Inuit and Métis-governed data and data systems
The cancer data strategy highlights First Nations, Inuit and Métis-led efforts to advance data and data governance, including the First Nations Data Governance Strategy which provides critical guidance to help ensure people have access to the right data to effectively plan, organize and deliver health care across Canada.
Work with First Nations, Inuit and Métis organizations and governments is in progress to ensure priorities can inform and advance First Nations, Inuit, and Métis-led, self-determined efforts to improve data and data systems.
A second phase of engagement is underway where enhanced engagements with both First Nations, Inuit and Métis partners and other health and data partners will take place to allow us to increase awareness of the importance of data sovereignty and First Nations, Inuit and Métis-led work to advance data and data governance as well as facilitate knowledge sharing by sharing case studies highlighting partner work. This information will be shared in a fall update.
What is the call to action?
Fulfilling the goals identified in the cancer data strategy will be a team effort. We call on health administrators, researchers and academic institutions, as well as federal, provincial and territorial policymakers to engage with the strategy and its priorities – to help build a more cohesive cancer data ecosystem, one that benefits all people in Canada and is positioned to respond to future challenges.
– Dr. Craig Earle, CEO of the Partnership
Download the pan-Canadian Cancer Data Strategy
Share your voice and perspective
We continue to seek input from health and data system partners to help us enhance and update this first iteration of the strategy. We are committed to continuing to engage with key partners to begin planning implementation efforts.email to Share your thoughts. Email us.