The patient voice: Promoting a patient-centred perspective
April 2012 marks the beginning of the Partnership’s second five-year mandate and the next phase of implementing Canada’s national cancer strategy. The priorities and initiatives for the next five years are outlined in our 2012-2017 strategic plan, Sustaining Action Toward a Shared Vision. Our website will soon be updated to reflect the activities supporting the strategic plan. The information below reflects the priorities and accomplishments of our work between 2007 and 2012.
In a cancer system that is often “tumour-focused,” reflecting the voices of Canada’s patients, families and survivors in the Partnership’s work is paramount. Their personal experiences help ensure our efforts to advance cancer control are tangible and meaningful.
To that end, the Partnership works closely with patients, families and survivors through charitable organizations, patient advocacy groups and the Canadian Cancer Action Network (CCAN), a volunteer-driven organization dedicated to ensuring patient interests remain a key priority on the national cancer agenda. CCAN’s members provide input on key Partnership initiatives, such as cancer research priorities and survivorship activities, often through CCAN-appointed representation on our various advisory mechanisms or through broader consultation. In turn, the Partnership looks to CCAN members to further disseminate information about the Partnership’s collaborative work through their own organizational networks.
By leveraging its broad membership, CCAN also helps to identify and address areas of common concern among those most directly affected by the disease. For example, a day-long symposium, hosted by CCAN in partnership with the Public Policy Forum and the Canadian Cancer Society, was held in Ottawa in September 2009, to discuss ways to improve Canadians’ access to cancer drugs.
In addition to our work with CCAN, the input of patients, families and survivors is encouraged through the Partnership’s various advisory mechanisms. To ensure a transparent and inclusive process, calls for participation are publicized through online postings.
CCAN member organizations
Cancer-site Patient Organizations
- Brain Tumour Foundation of Canada
- Canadian Bladder Cancer Network
- Canadian Breast Cancer Network
- Canadian Liver Foundation
- Canadian Lung Association
- Canadian Skin Patient Alliance
- Carcinoid NeuroEndocrine Tumour Society Canada
- Childhood Cancer Foundation Candlelighters Canada
- Colorectal Cancer Association of Canada
- Kidney Cancer Canada
- Leukemia & Lymphoma Society of Canada
- Lung Cancer Canada
- Lymphoma Foundation of Canada
- Melanoma Network of Canada
- Myeloma Canada
- Ovarian Cancer Canada
- Prostate Cancer Canada Network
- Thyroid Cancer Canada
- Young Adult Cancer Canada
Population Organizations
- Assembly of First Nations
- Canadian Cancer Society
- Canadian Partnership Against Cancer
- Cancer Advocacy Coalition of Canada
- Inuit Tapiriit Kanatami
Provincial CCAN Members
- Manitoba
- New Brunswick
- Newfoundland & Labrador
- Nova Scotia
- Ontario
- Prince Edward Island
- Quebec (Coalition Priorité Cancer au Québec)
- Saskatchewan (Saskatchewan Cancer Action Network, or SCAN)